At first glance Ajifa Khatun could be
any little girl, playing with her brothers and sisters and getting a
hug from her doting mother.
But although Ajifa looks like a toddler, she is in fact 19, having stopped growing just before her second birthday.
Ajifa weighs just 1st 3lbs, and still needs to be spoon-fed and carried everywhere by her mother Apila, 42.
The teenager was a healthy baby when she was born in 1994 and it wasn't long before she started to walk and talk.
However, her development then stalled.
Doctors initially told her mother and father, Sekh, 52, that Ajifa would start growing again.
They
then blamed cancer for her condition, before suggesting that it could
be a hormone disorder and the family are still at a loss as to why Ajifa
is how she is.
Scientists
believe that Ajifa could have Laron Syndrome, a rare genetic condition,
which is believed to have affected just 300 people across the globe -
with a third of them living in in remote villages in Ecuador’s southern Loja province.
People living with Laron lack a hormone called Insulin-like Growth Factor 1, or IGF-1, which stimulates the cell to grow and
divide to form new cells.
Too much of the hormone can lead a person
to develop breast, prostate or bowel cancers at an early age, meaning people with Laron will never get cancer, or diabetes.
'Ajifa is likely to maintain her childlike features for the majority of her life,' Tam Fry from the Child Growth Foundation told The Sun. Mr Fry believes Ajifa 'probably' has Laron Syndrome.
Instead of going to school or out to
work like her peers and siblings, Ajifa, who live in Mirapar, West
Bengal, India, passes the time playing with local children, only able to
take a few baby steps without help.
'She's
a delight and always has a smile on her face, but it's heartbreaking to
see her trapped in this life,' Mrs Khatun told The Sun.
Her father said his 'beautiful' daughter is always smiling and brings joy to her family.
'She doesn't communicate much but she knows what's going on around her,' he said.
|
Theory: Scientists believe that Ajifa could have
Laron Syndrome, a rare genetic condition, which is believed to have
affected just 300 people across the globe - including these people in
Ecuador |
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